Wobbly Wednesday 2015

A group of students are standing, smiling in the student Hub. Left to right; Jen C, Tiri, Tom N, George J, Tom R and Avram. Tiri is holding up a sign that reads ‘Wobbly Wednesday’

Every year our friends at Nystagmus Network name the first Wednesday of November ‘Wobbly Wednesday’ to raise awareness of the eye condition which affects 1 in 1,000 people in the UK. Here, at The Royal National College for the Blind (RNC), nystagmus is the most common eye condition among our student body and affects a third of our younger learners. Nystagmus is rarely an isolated eye condition and is typically a secondary symptom which escalates another eye condition. It can be congenital (from birth) or can be acquired later on in life, often as a result of brain trauma, other diseases or disorders.

 

RNC student Tiri Hughes, 17 from Devon, has a whole host of eye conditions, one of which is nystagmus and she explains “Nystagmus is basically involuntary eye movement which can be manifest, where the movement is always there or latent, where the movement occurs more sporadically. The movement of the eyes tends to be vertical, horizontal or a combination of both. However, mine is more like invisible nystagmus because my eyes involuntary move in a circular motion (torsional) so is less noticeable to others.”

 

Video: Tiri’s eye test

The short video below is a close up of Tiri’s eye which highlights her nystagmus. On the screen her eyes are involuntarily moving in a circular direction (torsional).

 

Tiri is extremely knowledgeable about her own range of complex visual impairments and the impact they have on her everyday life, she goes on to say “It’s complicated; I consistently have abnormal results in eye tests and the professors and eye doctors cannot formally establish exactly what I have.” However, Tiri is able to recognise a whole host of symptoms and attribute them to different eye conditions when she meets new people, she has met hundreds of young people and families affected by visual impairment since her mum, Laura Hughes, set up a charity in Devon called Moorvision in 2007. Tiri, who is currently studying AS Level Maths and Chemistry, says that this has helped fuel her passion for genetics, which she is hoping to pursue as a career in the future.

 

If you’re interested in coming to study at RNC, you can view our range of courses or give our student enquiries line a call on 01432 376 621

 

Article written by Bik Lee, Digital Media Officer at RNC